Last week we took Emerie to her eye specialist visit, that was conveniently scheduled out far enough that it wasn’t canceled or postponed due to COVID-19 closures.
The doctor’s office required I wear a mask and only one parent accompany the child. The one-to-one ratio is pretty fantastic and when the kiddo is well behaved, it’s even better! Emerie was a pro and you can tell that she likes Dr. Winkle. Not only did she sit very still on my lap while he checked her eye, but he also managed to get a few smiles, almost chuckles, out of her with some animals sounds. She took out on of the tools on the eye machine and nicely handed him his “toy” upon request.
The good news. She was great at her appointment and the eye patching is strengthening her eye. The bad news? Her eye muscles will require another surgery later this spring. Typically the over correction of the eye muscles accommodates the loosening over time, so that the eye ends up looking nice and straight. Since October’s surgery, her eye still trends inward a little more than it should and by now it over correction should be fixed. Dr. Winkle noted he would decide once she’s in surgery if the inside muscle requires loosening or the outside should be tightened.
I am hopeful that much of this quarantining will be passed us before she goes in, so her immune system doesn’t have to fight off any other potential invaders. Current rules also state that only one person is allowed back with a kiddo and that can be tough with a very unsettled and in pain toddler.
Harper and Reagan received their two year eye checkups with the specialist this week, more-or-less to confirm that no strabismus issues are present like their sister. The doctor did not appreciate that they were dressed alike, but did think it was funny! Both passed with flying colors and no longer need specialist eye care. Going forward, unless something changes, we will just monitor their eyes at the pediatrician. Great news!
Harper did well with the dilation drops and didn’t fight the doctor for the visit. She sat still on my lap and he examined those beautiful blue eyes without too much effort. (Random fact: light colored eyes like blue react easier to dilation!). Reagan, on the other hand, feels the way Harper feels about the dentist. Screaming, crying, trying to hold those eyes shut. She did not appreciate the drops and had her eye exam with arms held firmly down by Craig and her eyelids pried open by the doctor. Maybe we should be more appreciative that Emerie doesn’t respond to all the doctor visits like this.
They both had dilated eyes for the rest of the afternoon, but still enjoyed playing out in the sun and going for a family walk.
All in all, things are pretty good in terms of the Douglet eyeballs. We will continue to patch Emerie two to three hours per day and encourage use of her weaker eye, much to her dismay. The next plan is to purchase another pair of glasses with larger lenses and see if she likes them more than her current ones or if they improve her mood. We are also thinking outside the box…maybe getting a yellow pair instead of her usual purple! Either way, we know they will be cute on her.
Keep those prayers coming; and we will keep you all updated on her progress.
We are in a new stage where the girls don’t want to do many of the things they’ve been doing for months. For example, they don’t want to eat unless you feed them, they don’t want diaper changes and flail around like angry alligators when you change them, and they don’t want to wear their clothes but also don’t want them off. They certainly can’t seem to decide what they want!
This is making the day-to-day a lot more interesting, in a not-so-great way. These new habits change daily (even hourly!). At dinner time they will eat a couple pieces of the food set out before them (type varies each day) and then throw everything else on the floor, no matter if they love it or not or are starving or not. In fact, they refuse to eat any more unless someone sits there and feeds it to them, bite by bite. Looks like we are back in the baby stage on this one, at least for the moment. Let’s hope this doesn’t last too long because it’s mildly irritating and takes so much longer.
The good news on this feeding strike- everyone still enjoys a variety of healthy foods (when we feed it to them), including:
Broccoli: the current obsession with steamed broccoli is REAL.
Green beans/blueberries: they’ll eat a few themselves before starting the dodge ball match with you. Two of our main foods.
Mushrooms: this recent discover is a surprise, they are all thrilled to eat this off our forks and will eat ALL our mushrooms. Even a large container!
Corn: canned corn is a hit…sometimes they’ll eat it themselves for a handful of two.
Apples/grapes: we rediscovered these fruits last week and they chomp down both at snack time.
Blue corn chips: okay, not super healthy but they LOVE them.
Avocado: this is hit or miss right now, this has been a favorite food for six months now but lately it’s been floor decoration.
Sour cream: not really that healthy, but weirdly enough they will take a bite of anything smothered in it. And they will yell at you until more is shoveled into their mouth.
Fruit and veggie pouches: this is the go-to if we can’t convince anyone to eat their meal. Luckily they still like these and will chow down.
Yogurt: the funny thing is, they love yogurt and they love blueberries, but they do not love blueberry IN their yogurt. Sometimes I can sneak them in for Harper, but Reagan and Emerie will swallow the yogurt and deliberately spit out the berry with an offended glare at whoever is feeding them.
Reading that list doesn’t sound so bad…if they’d go back to feeding themselves. It doesn’t appear that teething is the issue and no one is sick, so that makes us believe that it is a mental game that they are testing us on. I was just getting used to handing them food and them eating it, even with the typical mess! And while the dogs very much enjoy this new trend…I would prefer to go back to them actually eating. Time will tell.
Most 1-year-olds dislike diaper changes and ours are no exception. Even with our “distraction” method, they still holler and try to get away from you. Since potty training (hopefully) is right around the corner, we are compensating for this rage by rewarding them. Once dressed they get the honor of throwing away the dirty diaper all by themselves…running into the kitchen and waiting for us to open the trash compactor so they can toss it away. Then they “help” close it and get a high five. This small task brings about a lot of toddler enthusiasm; although they are now fighting over them because everyone wants to participate, even when it isn’t their dirty diaper.
At meal time Emerie and Reagan always try to get their shirts off; Harper will join in when she sees her sisters do it. Thankfully they aren’t always coordinated enough to succeed; but, of course, this brings forth rage. And don’t even get me started on bibs…that ship has sailed.
Emerie is the anti-socks and shoes baby; she is the first to pull them off and will not wear socks in the house. Occasionally we can keep her indoor booties on. Craig thinks this has something to do with a dislike of socks that have the little grippies on the bottom. She is also mastering removing her shoes in the car.
Another comical thing- since Emerie dislikes socks so much, it means I am not “allowed” to wear them inside either. If I’m sitting on the floor and wearing socks (this is Alaska so I usually am), then she is at my feet trying to pull them off. She’s converted Harper to this idea and they team up; the two of them will insist on removing everything from my feet each night and either try to wear them or throw them down toward the laundry area.
Harper doesn’t mind her shoes, but won’t leave on any zippered coats or hoodies unless fully occupied with other things. She knows how to unzip her coat and will do so by the time the other two are suited up and ready to go. Now grandma just needs to teach her to re-zip it!
Reagan doesn’t seem to have an issue wearing her shoes or coats, but dislikes hats and really dislikes gloves, even on cold walks!
The girls are learning how to break a few more boundaries, such as reaching things on the counter they couldn’t touch before, climbing on higher surfaces while staring you down as you tell them not to, and opening the higher kitchen cabinet drawers that were never noticed (or locked) in the past. Reagan is convinced she should be allowed behind the baby gate in the living room when we are in open play mode- that area is blocked off by floor tiles and mini kid chairs. She keeps figuring out how to get back there and then gets stuck and mad about it. I believe we are right around the corner from another living room rearrange. We have an electrician coming out next week to raise several outlets so we can be a little safer and still plug things in.
So about five minutes after the nanny left yesterday, before Craig returned home from work, I turned around to this. In t-minus five split seconds someone (I’m guessing Reagan?) pulled this bag off the counter and sprinkled them everywhere. Then everyone, you know, who won’t eat for us…sat on the floor and enjoyed a marshmallow and dog hair snack together. We will now be pushing everything farther back against the backsplash. The good news is that everyone was completely willing to help me pick up the rest of them and set them into a bowl. I only stepped on the handful we missed for the next hour or so…good times. Here’s a fun reaction to me seeing the mess!
Emerie Eye Update
I took Emerie to her four week post-op checkup on Monday. The doctor wants to see us back in two months, after the holidays, to reassess if a third surgery will be necessary. While her eye isn’t trailing now, it hasn’t eased out as much as we hoped and she still looks a little cross-eyed at times. We knew this was a possibility and he intentionally over corrected during surgery in hopes it would center out on it own. There is now about a 50/50 chance we will require another one to loosen up one more eye muscle a bit more. There is also a possibility she will need another correction later; it could be five years, it could be thirty, only time will tell.
So for now, we keep doing what we are doing. Two hours of patching per day, more if she’s taking it well and forgets it’s on. Some days it might be a little less, because she’s either super grumpy or taken it off several times already. We continue taping each side of her glasses with medical tape, because she (or her sisters) won’t leave them alone otherwise! Minor progress, because we don’t have to put tape over the eye patch and the glasses now; the glasses help hold it on enough that she usually leaves it alone, at least for a while. And after patch time, she gets to hold her prize because she handled it like such a big girl!
With an opening in the doctor’s schedule for Emerie’s upcoming surgery, we pushed it up to today instead of the following Tuesday. The first procedure in June corrected her blurred vision by conducting a lensectomy and removing the cataracts in her left eye. The surgery then added a new lens and we’ve worked with patching to improve her eye use.
Today’s surgery, called an eye recession and resection, focuses on the muscles that control her left eye and will correct the lazy eye effects still hindering her. This is not considered a cosmetic surgery; while it repairs the look of a lazy eye and makes it less noticeable, it more importantly encourages her brain to use the damaged eye more and improves its focus and function. That is far more important than simply making it less visible to others, although that is a perk! The exterior eye muscle will be loosened and the interior one tightened to draw the eye in and minimize the wandering. The procedure is less invasive than the prior one but does result in a red, irritated eye for a couple of days.
There is a possibility she will need a third surgery in the future to do the same correction, as lazy eyes often shift back to some extent. With the nature of her eye issue, this is something that can be likely, but we won’t know for a while and it doesn’t happen to everyone. For now, straightening things out will hopefully assist her brain in using the bad eye even more than it currently has. We will continue with two hours of patching (of the stronger eye) each day and hope visibility improves.
As I wrote this, Dr. Winkle came out with an update that everything went well and she is in recovery. She went back with him about 7:40 and was done by 8:25. Pretty quick! Just enough time to get donuts… after another hour we headed back to post-op and helped settle her before going home for the day.
Emerie was much more active this time around, so we wandered around the lobby when we checked in, she even helped me with my purse. Back in the pre-op area she did not want to sit still or be contained, even with the Versed medicine. In typical Emerie style, she spit some of that medicine right back in Craig’s face as he wrestled to give it to her. He can tell you that it doesn’t taste very good. She eventually became woozy from it, but still wanted to move around. Last time she just snuggled!
After her meds she sucked down a tiny cup of water. That plastic cup entertained her for a good 15 minutes, making her giggle as it crinkled against her teeth. It made for some silly pictures (see below!). She would not let the nurse take her forehead temperature, fought the anesthesiologist on checking her heart and lungs, and decided the pulse finger machine was permanently hers. In fact, the pulse machine went back with her into the operating room because she was literally not giving it up. She also got to walk back there with the doctor, not a nurse like last time.
I made the mistake of sipping my coffee thermos in front of her that was not appreciated, especially with the no food or drink rule before a surgery with anesthesia. Mental note for next time: don’t do that in front of her!
The dog walkers took Kalli and Koda for some adventuring this morning while we were out, hoping to tire them enough for calm puppies the rest of the day while Emerie settles in. Harper and Reagan get nanny and grandma playtime while I snuggle with Peanut.
For now, we are home. She was much happier in post-op than last time around. Instead of upset and crying, she was snuggly and very sleepy. She slept on the car ride home and is now totally out on my lap in the nursery.
Thank you everyone for the prayers and encouraging words for Miss Emerie. ❤